Wednesday, January 21, 2009
Ava's Neuro Appointment
I thank all of you for offering your support and kind words to me about Ava's situation. We finally went to the neurologist today and he too has concerns about her later developing motor skills and her soft muscle tone. He said it could be nothing, but it could also be a whole range of things that he wants to test for. We had to have blood drawn out of her little hand today and it was horrible. They are going to do genetic testing and various metabolic tests. He is not concerned about her cognitive ability because she is right on course with that. She just has very lose muscles for her age. We won't get results back for 3-4 weeks and if they are inconclusive then we will just watch her for the next 3 months. If she is pulling up by then then we will just move on. If she is not then we will do further testing. This poor little girl can't seem to catch a break!